So I guess this is quite long. When I was 14 I was diagnosed with multiple personality disorders and then when I was 15, I had my first seizure. I was in a mental health hospital in Norfolk at the time and I had no previous history of seizures so nobody knew what was going on. I went for an MRI, a ct scan and loads of different EEG scans.
They all came back abnormal which is when I was diagnosed with myoclonic epilepsy. I was on Epilim (sodium valproate) for a year but because I am a young woman who wants children one day, I was switched to Keppra (levetiracetam) which I have been on for 2 years now. Everything was going well, seizures under control and it seemed I could live a normal life just I had to take medication, which to me wasn’t the end of the world. Last year I was in a car accident in which my airbag didn’t deploy on impact and my seatbelt had been damaged from the first break.
I was thrown forward and my head hit the windscreen, I was left with a fractured left shoulder, broken left hand and a severe concussion that lasted 5 days. After that, I was having more frequent seizures but nothing major. In the last few weeks, I have had nightly seizures and 2 hospital admissions in which the first one, I had 37 seizures and went into respiratory depression 3 times and cardiac arrest once. During this admission, which I am still in the hospital, I have not had as many seizures but I have gone into peri arrest, status epilepticus, and respiratory depression many times.
I am terrified of not knowing what is going on and I am only 18 years old and the fear of SUDEP (Sudden unexpected death in epilepsy) when I’ve only just started getting my life back on track after 4 years of sectioning, self-harm and suicide attempts and I’ve only just started actually wanting to live but there is always the fear that I’ll go into a seizure and not come back out.
There is a lot more to my story but this is mostly just my epilepsy and nothing else.
To learn more about Epilepsy, read more Epilepsy: Some Information